I’ve been on guaifenesin for 2 years and 2 months. I thought I’d write just a short update. I realize I don’t post much about my Fibromyalgia… mostly because I’m too busy catching up with life!
Please go to the Fibromyalgia Treatment Center site for much more information!
This was me in August 2005 with Phil & JP. I really didn’t have the energy to go on vacation but the other 3 needed time out. We only went as far as Chicago because I couldn’t ride in the car much longer. In fact, that ride was too much. We returned to the hotel in the afternoons so I could nap. We borrowed this wheelchair because I couldn’t walk very far. My legs felt like cement and I got fatigued really easy.
I don’t know if you can see it but my hair is fine and thin in that picture. Ugh! Within a few months of being on guai, my beautician was thrilled with how thick my hair had become. And my curls came back!
How funny (not funny, haha, YKWIM…) is it that now I can drive myself to see K in downtown Chicago, spend the day with her or pick her up, and drive myself home! That is exciting!!
I have discovered an error in my avoiding salicylates. I’ve been using Vaseline Lip Therapy occasionally. I am guessing since last winter. In reading the emails in the guaigroup (support group), I’ve discovered it isn’t safe. Huge groan! I don’t use it everyday but maybe 3 – 5 times a week. That means that on those days, I wasn’t clearing my FM out.
I’ve also wondered about our Butter Cream. I make it! LOL But when I started they said all butters were OK. I alerted them that not all butters are actual butters as for instance Aloe Butter is really Aloe Gel and Coconut Oil. So now they only verify that shea butter & cocoa butter are safe. I don’t know. And I doubt there are many patients of Dr. St. Amand that use odd butters like Kokum Butter that I use in the Butter Cream.
So today I made Goat Milk lotion with all sal-free ingredients. I had wanted to get that recipe changed to sal-free anyway. This was just the push I needed. I customized the recipe last night and made the lotion this morning. I love it! So I’ll put it to the test. Too bad it isn’t warm enough for the hot car test.
A little bummed that I’ve lost time but on the other hand it explains some things. I had more energy last February than I do now and that has been a concern and had me looking a little closer at what I use on my skin.
I can’t redo last year so will continue on. I do know that life now is MUCH better than in 2005 and preceding years. It only gets better.
In my previous post on taking K back to school… walking to the Planetarium…. was LONG! And we went passed the Aquarium… where in 2005, we parked handicapped, I was in the wheelchair, and we used all handicap entrances, etc. Walking this year was cold but I was able!
Thanks Joyce on this update on your condition. Did a gal named Angie ever email you about Firbo? I gave her your email as she has it and arthritis bad and migraines. Sure glad you have found things that help you.